Links We Love
RettGive Campaign
View or donate to The Twinsley’s Rett Give campaign supporting the research and developments of medicines to cure Rett Syndrome.
Follow Our Journey
Follow our Facebook page to see what we’re up to.
Team Twinsley Merch
100% of proceeds will be donated to Rett related research and care.
*If you are interested in a design or piece that isn’t displayed, please contact me directly to discuss!
Our Wishlist
Shopping for girls with differences due to Rett Syndrome like us can be difficult! View a wish list of items that you can be confident that we’ll love!
Roadmap to Cures
Our children’s futures depend on a rich and diverse pipeline of genetic medicine programs. RSRT keeps this pipeline flourishing in hopes of having the first genetic therapy available by 2028.
Donate via Venmo
All donations received will be used for Rett research and care.
Project Genetic
Free whole exome sequencing service for qualifying individuals. This is the service that first diagnosed Lura and allowed us to learn of their condition prior to their regression.
Project FIND-OUT
Free whole genome sequencing for qualifying babies 3-12 months old. This research project funded by numerous organizations diagnosed Claire after we received Lura’s diagnosis.
